Overcoming Resentment

Overcoming Resentment

overwhelmed woman

When caregivers recognize they need help, they sometimes find it takes time to research, and asking seems an uncomfortable admission of need. When it seems no one understands or hears their urgency, frustration that breeds resentment sets in. When a caregiver begins to feel disappointment as they see the dream of a life that never happened fading, or their future seems grim and unclear because of this unanticipated circumstance, resentment can show up unexpectedly. 

Resentment is defined as indignation at having been mistreated or treated unfairly, offended or insulted.

Many caregivers for those with memory loss begin their journey with a heart full of optimism, love, and a good dose of desire, to take care of a family member or good friend – all hopeful intentions. But over time, reality reveals that initial aspirations are not so easily attained nor sustainable.

Discoveries about the nature of the particular dementia disease become a daily education and often classes from various professional groups substitute for personal activities. Frequently, new behaviours require understanding and research to develop new management strategies as the disease progresses. 

Eventually, the wish to make life better for a loved one dissolves into a mixture of dread and desperation as caregivers wade through the fog of unfamiliar confusion. The psychological state of the loved one begins to need attention while caregiver self-awareness calls for new caregiving know-how. 

In time, caregivers recognize new financial responsibilities they never dealt with before, and realize they are making unexpected sacrifices in their personal lives and activities, all of which demand time to learn new life-and-management skills. Relationships that once felt comfortable begin to shift and change and the resulting uncertainties can tend to eat away at original foundations.

The caregiver’s life tends to change far more than initially envisioned. Any impact from the new role and tasks required generally are not evident right away. However, when that initial confidence shrinks, fear can slowly begin to fill the void.

THE THING ABOUT CAREGIVING

The caregiver is usually so wrapped up in the tasks of their new role that they rarely see the personal transformations happening. When caregivers are climbing the steep learning curve, swamped by all that is required of them to observe and learn, they quickly become desperate and feel the need for support, for someone to talk tofor reassurance that they are doing OK, and especially not to feel alone while caring for their loved one. This period, when fear is creeping into daily thoughts, is when caregivers sense the anxiety of panic. It is a time when they might begin to seriously feel the need for help, as they realize that they cannot carry the entire caregiving responsibility alone. They then recognize the importance of connection to others, the inspirational support that caregivers can share, as well as the value of professional counseling, therapists, and support resources. It is then, when they begin to come face-to-face with their own exhaustion, their overwhelming desperation from the losses endured, and the sacrifices made, that they might feel a sense of resentment bubbling just below the surface

While it might not be the norm for every caregiver, you would be normal if you were to go through a period of resentment. And while it might not be the norm for every caregiver, you would definitely be normal to try to find help to eliminate resentment.

You are may find yourself asking what is normal, what is typical. There is no such thing. But for the sake of understanding others in a similar situation, you might want to know if others feel as you do.

It would be normal to feel anger if it has been difficult finding support.  It would be OK to admit you have exceeded your abilities, It would certainly be reasonable to feel frustrated by the losses experienced because the person you care for has changed from the person you originally knew. You could rightfully feel you found it tough to be grateful, or to find positive aspects in a situation where you felt abandoned by a system of health care that is also overwhelmed. You would be normal to feel disappointed, bitter or even angry at the a situation you find yourself living in. You would be normal to feel alone. 

Although resentment does not happen often, nor to every caregiver, it does happen…and it is truly unbelievable how fast it happens.

CONSEQUENCES OF RESENTMENT

No matter what stage of memory loss, no matter which of the dementia diseases your loved one may be battling, caregiver emotions still build up and resentment can be a consequence. 

Caregivers are so busy and most times exhausted, that they might not realize they feel resentment. The cost of not recognizing it can impact your health, can bring on depression and other stress issues. At a time when you need all your energy and attention to stay well to care for your loved one, you want to avoid the chance of stroke, anxiety, ulcers, migraines, or other health issues.

If you address the resentment that comes from mistreatment or grudges, you can avoid additional anger and stress in your life.

We suggest that 
to overcome and eliminate resentment,
first seek professional help,
a trained counselor or therapist.

IDEAS FOR REDUCING RESENTMENT

While it is unlikely that a caregiver will resent each task,
it would be helpful to list the
(1) tasks. (2) reasons where resentment comes up.

Example:

  • Are you angry because you are being told to do things for which you previously have asked for help but never received it, so you feel inadequate to do the task? 
  • Are you feeling cheated because you have given up all your time to care for your loved one instead of giving any care to yourself? 
  • Do you feel the tasks seem to end up with negative results instead of positive? 
  • Are you associating emotions of this experience with those from earlier, unpleasant times?

The Australian. website, Start With Self, offers more: “How to let go of resentment”
Read their page. This is my recap:
1. Become aware of your resentment
2. Analyze the cause of your resentment
3. Begin to heal when acknowledging responsibility for your emotions
4. Find compassion for yourself inside
5. Learn the power of forgiveness

TAKE TIME to self-evaluate, and take action
if you sense any resentment.

MOVE BEYOND RESENTMENT

For the good of your mental health and your ability to continue caregiving, you may want to address the mistreatments that trigger your feelings of resentment.   It may take a day, a week, or one month, or maybe a year to find your way through the process, depending on the depth of hurt and amount of work you are able to exert to move through it – it takes the time it takes. A professional can help with that.

You may need professional help. Find it. There is no shame in needing and asking for help for something we cannot correct on our own. The knowledge professionals bring to their work will help in our growth as a caregiver as well as a person in our own life. We can also learn from this experience for future issues.

You may need to forgive in some way. Forgive. Forgive yourself for not knowing everything. Forgive yourself for not being able to foresee the behaviors that prompted the initial mistreatment. Forgive yourself for not always finding the positive side of an issue. Forgive yourself for having guilt or bad thoughts about the issues. We are all imperfect humans trying the best we can.

You may need to find aspects of your tasks for which you are grateful. Be grateful. Just feeling good about some part of what you do can change your attitude and emotional connection about the entire task. Be grateful that caring for a loved one means spending time together you otherwise would not have spent. Be grateful you could give back love to someone who gave love to you. Be grateful for the help you did get rather than resenting the help you did not get. 

Sometimes seeing a task from a different perspective helps remove resentment about it.  Look for a new perspective. I resented showering my loved one every day, having to prepare his clothes, undress/dress him became tedious to me.  I found that by getting service workers to come in for twenty minutes each morning to shower him, I could help by having his clothes clean and ready. I had reduced demands on me for that task and my perspective changed by having someone else doing the dressing.

Sometimes, raising the vibration of the emotion that you associate with the resentment of the task can be enough to lessen the emotion causing resentment and thus eliminating the resentment. Redefine and reframe the task and thus the emotional connection – for instance going from anger to frustration to annoyance. Feeling the emotional change might take time but be well worth it.

~

My loved one makes me angry because I have do everything to shower him in the morning.

My loved one frustrates me because I have to do everything to shower him in the morning.

My loved one annoys me because I have to do everything to shower him in the morning.

Annoyance does not make me feel resentment and so I can accept that I am annoyed with my loved one because I do everything to shower him in the morning. I even can detach enough to seek out help.

~

Those emotionally charged thoughts that caused your frustration, anger, disappointment, or despair, can be revisited. You can realign your situation from a positive perspective.  Consider yourself normal if you find you not only need help from other caregivers and support systems, but also from the world of professionals.

In time, those redefined and realigned thoughts and perspectives will give you space to find the wisdom and courage, love, hope and desire that you felt when you began your caregiving journey.

With the help of caregivers, of a counsellor, or professional therapist, you will find that overcoming the impact of resentment will be a gift to yourself that will last the rest of your caregiving journey and, hopefully, for the rest of your life.

Love and be well, 🌷 Judy

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Learn from our stories… BOOKS FOR CAREGIVERS and those who support them. Finding you are a caregiver, without warning, without training, without intention, all make the tasks ahead overwhelming and many caregivers become desperate at the thought of it, as they begin to learn all their new responsibilities entail.

Read our story, about out ten year journey while I cared for my loved one, who was diagnosed just after our retirement, putting a new spin on our plans for our later years.


Overcoming Resentment (c) 2023 Judith Allen Shone

Fatigued, in need of respite

Fatigued, in need of respite

Is it the heat? or maybe the humidity?

I sure notice how tired I am this month. Is it because summer is actually here and sunshine is pouring in our windows, baking us as it does each year? Our AC is working hard, the dehumidifier has to be emptied often and the three fans in the room are at full speed. But even with my protector screen in front of the southern window, the heat tends to make me sick.

I won’t open the door to let in the breeze because nothing filters out the humidity! My Love’s COPD cannot handle the humidity. My body cannot handle the humidity…on this one thing we do agree!

So what do I do? In the afternoon, if I see the tree tops swaying and realize there might be a small breeze blowing, when the sun is on the other side of the building, I open the door a crack, daring the humidity to come in, “…what point to run a dehumidifier with the door open?” I ask.

My Love reaches for his puffer. I know effects won’t last and he’ll feel a need for another puff soon. I step out onto the balcony and shut the door behind me. It is nice to feel the wind brush my arms, and notice my ”’much too long’ hair blowing around….to realize it is summer…the second one since the pandemic began. We have been inside for so long!

I have just spoken with the head of the day program where My Love attended 16 months ago. They anticipate possibly being able to open, on a limited-participant-each-day basis. Oh, how nice to hear that. It had been such a nice few hours for me each week. She asked what I thought about starting again…after our second vaccines this month.

How different it is now than those months ago. How changed I am, and My Love is. How much older I feel having been isolated so long. I consider how much My Love’s memory has lapsed since we left the program for lockdowns. I consider how much functionality his body has lost, how much more I must do for him, think for him, say for him—he is never alone. All the time now I am two people, multi-tasking, double-track thinking, perhaps? Will he fit in with the day program folks now? I wonder.

He doesn’t register anything about the virus, he hates the mask on his face and has no idea why he must wear one. The one criteria of concern is the need for social distancing. It will have no meaning. I seriously doubt he could consciously understand the need to stay at 2m from someone else. He has no clue about the virus, even when I mention the ‘big sickness.’ He does not remember my words, let alone know what they mean. Masks and distancing are off the charts of understanding.

But, I definitely need respite. I am aging faster than I would have believed possible. I feel old. Much older than the sixteen months that have passed since we have been isolated, like captives, in our small apartment. I need the stimulation of other people. I know I need some grooming, some TLC time for me.

Without a doubt, I need to be refreshed, recharged, repaired, the same as someone focused on driving all day needs a rest, I need to relax with both eyes and both ears, and full mind attuned to something other than my responsibilities toward My Love’s every need. I have ‘grabbed the bull by the horns and moved forward,’ long enough without help.

Our second vaccines were last week. We had relatively little reactions, and this week it seems we are OK. I am calling the services we had before the pandemic halted our lives to see if we can get some help for My Love and respite time for me.

Hopefully, the powers that be will acknowledge my request for someone to help with showers and shaving. Someone to talk to him while I go to the basement to do loads of laundry. Hopefully, someone will come and relieve me of continual conversation…ultimately with myself…yet provides a closeness that stimulates his mind. My wish is that someone else can keep him from wandering off to find secret spots: to hide his puffers, to deposit his pills he’s put in his pockets, to hide his accumulated, folded squares of Kleenex, to remove and hide his Depends without telling me. It is amazing how quickly he can scoot down the short hall, after asking permission to go to the bathroom, and carry on all his clandestine activities in the back rooms….all while I am in the kitchen cooking or washing up. Unfortunately, from there I cannot see or watch him. If I did not know better, I would say he planned his mischief so I would come out and play with him! But alas, he is just ‘doing things without thought’ like many one-year-olds…he has not words to tell me, he just does…that’s his level now in stage seven.

Light at the end of the tunnel is having someone to relieve me while I take a nap; even if they can look through picture books together while I catch up on another of many forgotten chores. I am not young anymore. My next birthday will be my 80th. I understand that having respite might not come from the day program if he can’t meet their criteria. Even though I don’t have the energy to do the many other things I used to do, planned respite hours from somewhere just might allow me again to be a rested caregiver, to carry on from one respite period to the next.

signoff initials

I know exhaustion happens to us all. Take note. Take action. That’s the plan.

Do you have your plan? Visit our blogsite page Respite Ideas. Time to make your plan.


Fatigued, in need of respite. (c) 2021 Judith Allen Shone

Flickering Magic

Flickering Magic

confused man

Thank you for joining me. . .
. . .you are my sunshine!!

Have you as a caregiver encountered any communication issues recently? If you realize it could happen along your path, maybe you can reduce your stress and worry by knowing others struggle with this as well!

Eleven months ago, when I wrote about it here on this site, I asked, Where Do The Missing Words Go?

Back then, My Love was beginning to have serious problems finding words to explain his thoughts.

I wondered how terrible it must feel to be unable to ‘call up words on demand’ to speak your thoughts. At that time, if no other way worked, he used charades, a concept replacing the word with an idea, communicated via an ‘acting’ mode.

Memory loss is not just forgetting where you put the keys, not just taking longer to think of a friend’s name, not just bringing home eggs when you meant to buy bread. I have witnessed My Love’s Alzheimer’s brain, the boss of the bodily functions, destroy his abilities on all levels, bit by bit, nipping at a life that once emanated from the person, the life that once dazzled the world with vitality. His lost words are just like his weakening ability to walk, and his body’s confusion about when he is supposed to sleep.

I know how frustrating it is when I cannot magically find ‘that one word’ to describe what I am trying to convey. But to lose connection to all our words must be more than discouraging, unless of course, you have memory loss, plus anosognosia, and don’t know it is happening.

blurry words

In the months since I told about My Love’s word finding difficulties, his Alzheimer’s has progressed. His memories and recognition of his daily surroundings, have all but disappeared right along with his words. He can no longer use charades because the concept does not seem to be able to transmit to the ‘acting’ part of his brain.

On the other hand, now I must try acting out what I am asking of him. For instance, to take his pills, I put one pill in my hand and raise it to my mouth…wait for him to follow. Then I put the glass of juice in my hand and lift it, to show to drink it with the pill…wait for him to follow. Sometimes he does not understand this and I must take the glass, put it in his hand and lift both hand and glass to his mouth to get him to grasp what I try to say with words. And sometimes, it is more complicated than ‘acting out’ with pills!

Caregiving just takes a great deal of patience, counting to ten, being able to be flexible, going with the flow, one moment at a time. I aim at being kind, knowing I do the best I can with what I know at the time. 🥰

It is incredible to note how common it has become when one sentence cannot be completed. Like a child, the sounds come, one or two at a time. But My Love’s 81-year-old sounds are not necessarily recognizable as words anymore. The attempts are there. He realizes, momentarily, when he cannot find the right word. And then he tries again…not remembering that he tried to find that word just moments earlier. I am aware of his brief frustration from word loss; but, that, too, disappears quickly.  

Sadly, the magic of my soul needs recharging. Yes, I become impatient listening, but I do try to help by suggesting words— it is hard to find words he understands! He does not even understand when I try to act out the words. The connections are definitely disrupted.

It is my job, me, My Love’s partner and caregiver of over eight years, to step in, with a smile and laughter, to bring life back into his face, vitality into his life. I guess at the words he cannot find, as if I could magically discover his thoughts and say them out loud…but my magic wand does not always work!

man searching

 It has become difficult for him to give me a clue. His ability to get the thought from his mind to his mouth seems to have been cut short by the brain areas that control those complex functions. The available means to tell me have diminished and, as a result, so do our conversations.

My Love may be losing many of his words, but he does still have feelings. He still can laugh, he still looks at me with a heart-felt, kind smile, a sense of thankfulness that I am there, an uncertain awareness of what is going on around him. Yes, even if he cannot explain them, he still has feelings.

At times, I chuckle when I respond to him with what I guess he might be saying—he still has his scripts, so deeply embedded, that his response will invariably be, ‘right,’ or ‘I know’  or a nod of the head, even when the answer I give could not possibly be correct!

fairy angel

Every so often, I wonder if I can keep my caregiving magic alive during the later stages of Alzheimer’s. I have been told it will become harder to communicate as we walk the later steps of this journey together…I, too, am learning! But like I have done since day one, I will remain My Love’s ally and partner, his caregiver, regardless of what I am asked to do.

I can’t stop… even if I am getting tired…it is time to get the wizardry back into my life and get the magic, beginning to flicker in that wand, recharged!

🌞I hope this little update of a caregiver’s life in the world of Alzheimer’s magically melts away some stress for you today!!🌞

Before you leave, check out the rest of this site especially Caregiver Tips!!
Sign up to get notices…and we’ll watch for you next time….! 🌞💝🌷 ~ jas

Each day, do something that makes others smile and your heart sing.


Flickering Magic! (c) 2020 Judith Allen Shone