If you need to respond to an emergency and you are not sure whether you should go to the Emergency Room:
1. call Telehealth Ontario 24 hours a day, seven days a week and speak to a Registered Nurse, toll-free at 1-866-797-0000.
2. in a medical emergency, Call 911 immediately
Do not call Telehealth.
3. Call 1-877-825-9011 C.O.A.S.T. – Crisis Outreach and Support Team in Halton Region, Ontario.
Become familiar with these three groups and how they differ.
That’s the blaring sounds of the fire alarm in our building that you hear!
It was 8 o’clock in the morning. I had just poured my coffee, thinking it was time to begin wake up calls for My Love. But as I placed my coffee down on my desk, loud, high-pitched sounds began to pierce the air. Our building fire alarm was blasting through our speakers.
First, I went to waken My Love. He had not been disturbed by the sounds. In fact, he was still asleep. I nudged him and when I asked if he heard the fire alarm, he grumbled, “what?”
My Love normally had excellent hearing, but right then when I asked him if he heard the alarm sounding as he slept, he mumbled, “no.”
That is not good news…he can’t hear those harsh, loud sounds, plus they mean nothing to him!
The rule of thumb for fire alarms has been ‘everybody out.’ Except in our case, we live on the twelfth floor, we are nearly 80 years old and physically could not walk down the twelve floors very fast together. And if we encountered fire and had to go back up and then down the other side, we could become a distraction the fire department would not need. We have been told we are on the building’s ‘high risk’ list, and have been advised to stay in our apartment with a wet towel on the floor by our doorjamb. We were assured that if we needed to leave, the firemen would come get us. That’s exactly what we do.
In case we had to be ready to leave the apartment, I slipped on a dress and put on my sandals.
I told My Love, “You have to get up right now, and get dressed . . . right now.”
I repeated it a couple times, but he did not understand my urgency. His eyes opened, and in his normal snail-paced movements he sat up, looked at me and asked, “what?”
“There…those sounds That is the fire alarm!” I reminded him. He just looked at me. Silence. I could tell this time he had no memory of what those incessant sounds meant.
I explained, “There’s a fire in the building and we must be ready to leave if we are asked to go.” Grabbing a shirt and pants for him to put on, I continued, “You have to be dressed if the firemen come to take us downstairs.”
Since “fire” means nothing to him — the alarms now must be my ‘wake-up call!‘
My words did not increase his pace one bit. He did not relate to my coaxing. He slowly removed his pajama top and began to put on his day clothes.
There was no way I could speed up the process. If I became anxious, My Love would become anxious and dressing would be halted. I waited. One leg in the pants. The other leg. One sock on. The other sock. I tried to tuck in his shirt while he leaned over to put on his shoes. He pushed me away.
On the way down the hall to the living room, he took a detour to the bathroom.
Good. He will get that over with.
Instead, he picked up his comb and began to smooth out the ‘messy look’ from his sleep. I forcefully reminded him to use the toilet, with a small demonstration to be sure he understood.
The alarm had not stopped. The ongoing reminder to hurry did not mean emergency to My Love.
Quickly, I gathered my phone, my purse, My Love’s puffer, a water bottle and our “emergencies” bag and placed them all beside the front door. In the moments of excitement, I wanted that ‘stuff’ accessible if we had to leave in a hurry. That was a reminder that I should update that bag when the crisis ended. (Download my Grab ‘n’ Go Bag below.)
Here had been one more experience for which I was not ready. I knew my personal role in the fire alarm script. I was not ready with an evolving plan for My Love. I am not even sure I could make one now, except that I am acutely aware that he can no longer think for himself in emergencies . . . at all.
Once in the living room he began turning in circles, holding his hands over his ears. Those earsplitting sounds were still resounding through the speakers. He was definitely feeling the vibrations. I opened the patio door to see if I could smell smoke. I stepped out and looked over the balcony. No one was there. Usually for fire alarms, there are people from the lower floors in the back garden area. I saw no one. Although I had smelled smoke, I saw none.
I quickly walked through our living room and kitchen. There was a faint smell, coming through the air duct. I could only suspect it was a kitchen fire that had set off the alarms. With that in mind, I went back to check on My Love.
“Why don’t you sit on the balcony until we know if we are staying or going,” I mentioned, as I directed his focus to the balcony chair.
“Where are you going?” he looked at me. “I am going with you.”
I gently pushed him to come inside to sit on the couch. “I will go see if anyone is in the hall,” I reassured him, so he would not follow. “Then we’ll know what we will be doing.” I walked to the door.
As I looked through the peep hole I saw three firemen dressed in full PPE, in the hall walking toward our door. (Personal protective equipment – a term I learned because of COVID-19.)
I am glad they moved fast —there were so many questions I could ignore in my mind. I opened the door to see what they’d say.
“Just investigating, ma’am. Is everything OK in here?” he asked stepping into our entry hall. “Let me look in your kitchen,” he said, passing in front of me toward the kitchen door. “Everything OK here?” he asked again. I shook my head and said, “yes.”
After checking our smoke detector, he left our apartment and knocked on our neighbour’s door.
I got My Love a coffee, and we sat in the living room until the alarms stopped and the fire department announced that everything was under control. “Have a good day.”
And that was that. We may never know if it was a nuisance alarm or a manual fire alarm pulled in a hallway as a prank. We will not hear if it was a kitchen fire or someone smoking in bed. We will not know if it was a short in some system. We just know the fire department responded and they felt good enough to leave.
But lessons for me were how unprepared I was for My Love’s lack of understanding of the word “fire,” and how surprised I was that the alarms meant nothing . . . even once he heard them. Next time, I would probably do nothing different than this time, but at least I had been given a glimpse into the experience that might happen again.
This had been the kind of glimpse I like to give caregivers in my books! Yes, writing my books was the right thing to do!
One other red flag that came from this ‘alarm’ was that I had to update our emergency bag more often, to check that meds were current, that keys were there, that the emergency items on the bag list were there. I would not put the bag back on it’s hook until I did that.
Fortunately, our early morning emergency turned out to be “nothing serious.” But it was indeed a second chance, a sign, providing me the incentive to make a plan for ‘what if and when’ we have another emergency.
NOTE: Incredibly, there was a second fire alarm that same day and a third they called a ‘false alarm’ the following night…being investigated!
Both additional alarms were early evening and My Love and his memory were tired. He still did not understand ‘fire,’ no seriousness, no urgency. I still could not explain to him why the sounds were coming through the speakers, nor why I couldn’t turn off the noise. The alarm lasted a good twenty minutes. But all the alarms revealed more memory decline causing me to be concerned that My Love might become agitated and even aggressive because of lack of understanding. I know he must feel safe at all costs.
No fire source was found then, either, but the urgency to fill my Grab ‘n’ Go bag has become high priority!
That morning made me realize I needed to update my thinking about emergencies while living with my partner in late stage Alzheimer’s.
Your emergency might not be a fire alarm, but being prepared for the unexpected is the plan. This is what I discovered related to the Grab ‘n’ Go bag. Add or remove items as appropriate.
Remember your walking cane, rolling walker, or wheel chair, if necessary.
- Make an emergency Grab ‘n’ Go Bag (large backpack might do, with or without wheels) for you and your loved one(s). Gather items and determine best size needed. Can you lift or carry it?
- Slippers, extra set of clothes
- Extra underwear or depends
- Plastic bag to put wet clothes in
- Tissues, wet wipes
- Spare eyeglasses, sunglasses
- Medical documents, medication list, medications
- Health card(s), doctor list and phone numbers
- Small notebook and pencil
- Phone (if not elsewhere) and phone charger/cord
- Identification documents, including passports
Personal lanyard ID to be worn if away from home
- Power of Attorney (POA), copy of will
- Current photograph
- iPad, book and/or magazine for entertainment for one with Alzheimer’s
- Medic Alert information (be sure bracelet or ID is worn)
- Emergency phone list in case you need to make calls
- Bottled water for each person
- Snack items
- Extra money or credit card
- Face masks and disposable gloves
- Hand Sanitizer
- Evacuation plan
- Follow plans, rules, orders to make efficient evacuation
- Know the meet-up place assigned (tree across the street, etc.)
- Plan transportation to call, plan a safe destination
- Prepare to share diagnosis with staff where you go, hotel, airline etc.
- Stay together, do not leave loved one alone
- Remain calm so as not to create anxiety for anyone
- Prepare what you would do if wandering, agitation or aggression were to begin.
For your local area, check online to see if there are specific instructions for emergencies related to those with memory loss . Put the information in your bag.
DOWNLOAD Grab ‘n’ Go Bag List here. Use as example to make your own list.
..Pictures are representations but not actual locations or people from the story.
‘What if’ Emergency Copyright © 2020 Judith Allen Shone
BE PREPARED for the role of caregiver…my stories from my life as a spouse-caregiver are written in real time just like this story. Read the stories I share to become prepared for life in the world of Alzheimer’s!
For more book information, visit caregiver-books.com
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